Added 2025/11/2025-11-13-uk-biobank-3.md #19143
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Pull Request Overview
This PR adds a new DMCA takedown notice file from UK Biobank Limited regarding unauthorized sharing of their proprietary biomedical database data on GitHub. The notice requests removal of a specific CSV file containing UK Biobank data that was posted in violation of their Material Transfer Agreement.
- Adds DMCA takedown notice dated November 13, 2025
- Documents UK Biobank's request to remove infringing genetic/health data
- Includes standard DMCA notice sections: introduction, location of infringing material, confirmations, and contact details
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| UK Biobank is a large-scale biomedical database and research resource, containing in-depth genetic and health data that it has collected from half a million UK participants. As such, UK Biobank owns all intellectual property rights over all data collected. More information about UK Biobank can be found here: [https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us](https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us). This data is made available to bona-fide researchers who have successfully completed UK Biobank’s stringent application process to undertake health-related research. | ||
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| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at [https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf.pdf](https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf), upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. |
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The link text shows Material-Transfer-Agreement.pdf.pdf (with double .pdf) but the actual link destination only shows Material-Transfer-Agreement.pdf (single .pdf). This creates a mismatch between the displayed text and the actual URL. The link text should be corrected to match the actual destination URL.
Suggested change
| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at [https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf.pdf](https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf), upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. | |
| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at [https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf](https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf), upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. |
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| Having regard for the sensitive nature of the original copyrighted work, UK Biobank does not provide the data in any format other than the secure way it is provided to approved researchers. | ||
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| **<u>Location of infringing material</u>** |
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The HTML <u> tag is used for underline formatting, which is not standard markdown syntax. Consider using pure markdown formatting or removing the underline tag for consistency with markdown best practices.
Suggested change
| **<u>Location of infringing material</u>** | |
| **Location of infringing material** |
| [private] | ||
| [private] | ||
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| **Tel:** [private] |
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[nitpick] There are two spaces between the colon and [private] instead of one. This should be corrected to use consistent spacing: **Tel:** [private] (single space).
Suggested change
| **Tel:** [private] | |
| **Tel:** [private] |
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A 2025/11/2025-11-13-uk-biobank-3.md