Added 2025/11/2025-11-13-ukbiobank.md #19141
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Pull Request Overview
This PR adds a new DMCA takedown notice from UK Biobank Limited regarding copyright infringement of proprietary biomedical research data hosted in GitHub repositories.
- Adds DMCA takedown notice dated 2025-11-13 from UK Biobank
- Lists 12 infringing file URLs across two forked repositories
- Documents copyright violations related to unauthorized sharing of licensed research data
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| I swear, under penalty of perjury, that the information in this notification is accurate and that I am the copyright owner or am authorized to act on behalf of the owner, of an exclusive right that is allegedly infringed. | ||
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| **<u>Contact details</u>** |
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Inconsistent formatting: This heading uses both Markdown bold (**) and HTML underline (<u>) tags. Other similar files in the repository use plain text for section headings. Consider using just "Contact details" or plain text "Contact details" to match the existing format in other UK Biobank notices.
| **<u>Contact details</u>** | |
| **Contact details** |
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| Should you require any further information or clarification, please do not hesitate to contact me at [private] or using the details below: | ||
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| **UK Biobank Limited** |
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Inconsistent formatting: This line uses Markdown bold formatting (**UK Biobank Limited**) while other similar files in the repository use plain text. Consider using plain text "UK Biobank Limited" to match the existing format in other UK Biobank notices.
| **UK Biobank Limited** | |
| UK Biobank Limited |
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| Dear GitHub, | ||
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| **Introduction** |
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Inconsistent formatting: This heading uses Markdown bold formatting (**Introduction**) while other similar files in the repository use plain text. Consider using plain text "Introduction" to match the existing format in other UK Biobank notices.
| **Introduction** | |
| Introduction |
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| The data contained in these files is licensed by UK Biobank to bona-fide researchers to conduct research in association with their approved purpose only and in accordance with contractual terms agreed between the parties. Such licence does not extend to the ability to post the data on a public forum. We have attempted to contact the owners of the repositories but without success, therefore we request that these files are removed immediately in accordance with the DMCA requirements. | ||
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| **Confirmations** |
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Inconsistent formatting: This heading uses Markdown bold formatting (**Confirmations**) while other similar files in the repository use plain text. Consider using plain text "Confirmations" to match the existing format in other UK Biobank notices.
| **Confirmations** | |
| Confirmations |
| [private] | ||
| [private] | ||
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| **Tel:** [private] |
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Inconsistent formatting: This line uses Markdown bold formatting (**Tel:**) while other similar files in the repository use plain text. Consider using plain text "Tel:" to match the existing format in other UK Biobank notices.
| **Tel:** [private] | |
| Tel: [private] |
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| UK Biobank is a large-scale biomedical database and research resource, containing in-depth genetic and health data that it has collected from half a million UK participants. As such, UK Biobank owns all intellectual property rights over all data collected. More information about UK Biobank can be found here: [https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us](https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us). This data is made available to bona-fide researchers who have successfully completed UK Biobank’s stringent application process to undertake health-related research. | ||
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| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at [https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf.pdf](https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf), upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. |
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The URL for the Material Transfer Agreement contains a duplicate .pdf extension. The URL should end with .pdf not .pdf.pdf. This appears to be a typo that would result in a broken link.
| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at [https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf.pdf](https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf), upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. | |
| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at [https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf](https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf), upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. |
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| Having regard for the sensitive nature of the original copyrighted work, UK Biobank does not provide the data in any format other than the secure way it is provided to approved researchers. | ||
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| **<u>Location of infringing material</u>** |
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Inconsistent formatting: This heading uses both Markdown bold (**) and HTML underline (<u>) tags. Other similar files in the repository use plain text for section headings. Consider using just "Location of infringing material" or plain text "Location of infringing material" to match the existing format in other UK Biobank notices.
| **<u>Location of infringing material</u>** | |
| **Location of infringing material** |
This is an automated pull request to sync changes from upstream repository.
Diff summary:
A 2025/11/2025-11-13-ukbiobank.md