Added 2025/11/2025-11-07-uk-biobank.md #19101
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Pull Request Overview
This PR adds a DMCA takedown notice file dated November 7, 2025, from UK Biobank Limited regarding unauthorized sharing of their copyrighted biomedical database data on GitHub.
- Adds a new DMCA takedown notice for UK Biobank data breach
- Documents UK Biobank's intellectual property protection request
- Identifies infringing repository containing licensed research data
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| UK Biobank is a large-scale biomedical database and research resource, containing in-depth genetic and health data that it has collected from half a million UK participants. As such, UK Biobank owns all intellectual property rights over all data collected. More information about UK Biobank can be found here: https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/about-us. This data is made available to bona-fide researchers who have successfully completed UK Biobank’s stringent application process to undertake health-related research. | ||
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| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf.pdf, upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. |
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The URL has a duplicate .pdf extension. The URL should end with .pdf not .pdf.pdf.
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| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf.pdf, upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. | |
| Researchers must sign UK Biobank’s non-negotiable Material Transfer Agreement located at https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf, upon which a licence is granted to allow access to the data. Researchers can access the data via an account on our cloud platform, linked to each researcher’s individual registered account, or via a secure download using a unique time-limited encrypted key. These data (which, for the avoidance of doubt, does not include summary data and/or publications produced by researchers upon completion of their project) are not, under any circumstances, available for use on a public basis. Researchers have a contractual obligation to store the data securely and to not share data with any unauthorised third parties. By committing part, or all, of these data sets to a repository on GitHub, the user in question is in breach of their contractual agreement with UK Biobank. |
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A 2025/11/2025-11-07-uk-biobank.md