Abstract
As the number of the genetic studies has rapidly increased in recent years, there has been growing concern that the privacy of the participants in such studies can be invaded unless effective measures are adopted to protect confidentiality. It is crucial for the scientific community to establish a method to anonymize DNA samples so that the public will trust genetic researchers. Here, we present a reliable and practical method of making DNA samples used in the genetic research anonymous. It assures complete anonymity by coding samples and personal information twice. Since it does not require equipment, such as bar-code readers or a software package, its cost is nominal compared with the laboratory costs. All institutions engaged in genetic research may wish to take measures such as the one described here to ensure the privacy and confidentiality of the participants in their genetic studies.
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Acknowledgements
We thank Toppan Label Co. for manufacturing all the labels used in the anonymizing procedure describe in the present manuscript.
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K. Hara and K. Ohe contributed equally to this work
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Hara, K., Ohe, K., Kadowaki, T. et al. Establishment of a method of anonymization of DNA samples in genetic research. J Hum Genet 48, 327–330 (2003). https://doi.org/10.1007/s10038-003-0022-6
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DOI: https://doi.org/10.1007/s10038-003-0022-6